11/30/2006

Dealing with it.

Yes, I had a chronic illness but did I really have to feel so crappy, so often and beat myself up over it?
I made an appt. with my ‘shrink’ (now located literally across the street) to take a stab at figuring why I was letting this happen.

One visit consisted mostly of me crying and telling her how much I hated diabetes. I didn’t want it. I didn’t want to deal with it. It was all my fault. I didn’t want to feel like crap. She let me get it all out, and then gently proposed the idea that I did in fact have a choice in all this. Decide you are not going to take care of yourself, and let what happens, happen and stop beating yourself up over it. Or do something. This blaming myself was not helping at all.

Over the next few weeks she reminded me of things I already knew, yet needed to hear. Diabetes was not going anywhere so deal with it. That it’s okay to be angry but don’t take it out on myself. Life is all about choices. I realized I was not okay with letting my health be left completely up to fate. Slowly my desire to feel good, see better numbers and not feel guilty won out over the anger and my attitude shifted. I also can to realize that this whole process of getting fed up with diabetes, getting angry, then fighting back, is an ongoing one. It will happen again. What changes is my ability to deal with it not hurt myself as much the next time I fall. Fall, I will, I’m sure of it. This is a disease that pushes its way into every nook & cranny of my life and sometimes the good care & control is just too much on top of life happening all around me and that’s okay, I’m getting better & better at picking myself up.

I can honestly say that I am doing better. Better but not perfect or great. I don’t think diabetes care will ever be easy or second nature to me but I think it can be something I can make work for me.

11/19/2006

Diabetes Immersion Therapy

I think part of the reason I thought a job with ADA would be a perfect fit for me is because I thought that if I was immersed in diabetes than I would really have to get my shit together. Surrounded by diabetes information, advocates and those familiar with my plight, all working towards the same goal there was no way I could be the same slacker. My idyllic plan of diabetes care being all of the sudden easy didn’t’ pan out exactly as I had envisioned.

First of all, the whole job changing/new job thing was a bit stressful and much hard work. I started right before it got crazy busy and then it was full speed ahead. I am now trying to catch up on all the things that are regularly part of my job but got pushed to the side while Walk season was in full swing. This took a toll on my blood sugars and there were some pretty ugly roller-coaster days.

Secondly, just because the people I now worked with got diabetes didn’t mean that they instantly got me or how the disease affects me. I had to show and they had to learn what happens to me when I’m low, how highs make me feel and bottom line they are not my diabetes police. It is wonderful to work every day amidst those who understand diabetes better than most and have a much better idea of what diabetes care entails but each person’s diabetes is so personal and they got that too, so I had to lead the way.

Thirdly, I was embarrassed at my lack of control. A couple of my co-workers seemed pretty excited to have some one board who "got it"; someone who worked hard, lived with diabetes every day and had done something right to stave off the complications. Me? Hell no. I honestly believe that I have made it this far by pure luck. I wanted to be that person they saw me as, but knew I wasn’t even close.

I heard about and saw firsthand those who had not been as lucky as me:

  • A woman my age who had gotten a kidney from her sister in order to live.
  • A name I recognized as someone I went to camp with was blind.
  • Someone’s mother-in-law who was a double amputee.
  • A volunteer who was on a liquid diet and near kidney-failure.
  • A phone call from an old camp friend who had a double bypass (kidney & pancreas) last year and had news of all those MY AGE who were blind, had suffered strokes, kidney failure and amputations.

It was all too much. I took no better care of myself than these people (well except for the never drinking regular pop, even I couldn’t do that) and look at what happened to them. What the hell differnce did it make if I took better of myself? The complications were inevitable. At least I was doing my part by working at a diabetes organization; the rest didn’t matter. This defeatist attitude lasted for a while and then I began getting really sick of feeling sick all the time.

continued in the next post

11/16/2006

ER & Other Details of The Worst Phone Call Ever...

“Thank you for calling the American Diabetes Association. This is Melissa how my I help you?”

“Is this Melissa Sutton?”

“Yes, it is” I say distractedly, wondering what new task this phone call will entail. It’s Friday afternoon and I’m so ready for the weekend.

“Mrs. Sutton, your husband asked me to call you. I am a social worker with Akron General Medical Center in the ER.” She has my full attention now.

“Your husband is awake and alert but you need to get down here quickly but safely.”

I lose all feeling in my limbs and my heart plummets. Oh. My. God.

Luckily a co-worker from the Akron office (I was in Cleveland) was seated at the computer right by desk and when I asked her if she could tell me how to get to the hospital she said that she would take me there. So I told my boss my husband had been in a car accident and that I needed to leave and followed my co-worker to the parking lot. She made sure I had her cell phone number in case I got lost and then led the way. Not before asking if I needed her to actually go into the ER with me. I had only met her once before, this was not here problem, the woman had said “awake & alert”, he would be fine I told her no thank you.

On the way down I think I made some phone calls but it is all pretty sketchy. I know I did get a call from one of the other guys (who was in the car with Rich, en route to the cabin for camping) wives and even though she sounded quite panicked she really didn’t know much so I cranked the music & tried stay calm. The next call was from one of the Revs I used to work with at the church and she was definitely panicked & insisted that I not go to the ER alone. Shit. Shit. Shit. She had gotten news of the accident because initially my husband was so disoriented that he couldn’t remember that I had a new job or how to reach me. She said it did not sound good. I called my co-worker and asked her if she would mind coming in with me, explained why & she said no problem.

We got there, I felt low but was actually super high, but opted to not bolus for it since I had no idea what I was about to see or hear. After making sure that I was okay with some blood the social worker took me back to the trauma room where the first thing my dear husband said to me was that he was sorry. Sorry for getting in the accident and more so for not telling me that he loved he me when I left for work that morning. It was like a scene from "ER" with one doctor stitching up his hand and arm while another worked on his head. There were several large 'pads' on the floor beneath his head, stained pink from his blood. At first glance I thought there was no way they would be able to close the gashes on his elbow or head, but they did. Somehow I was able to stay in the room while they stitched him up; I found a strength I never knew I had. The suturing as they call it took hours and totaled about 50 stitches.

I was back & forth to the waiting room of the ER to make phone calls and give updates to the friends who had been in the car with him, my sister who came to be with me and the minister who came to lend support. None of the other 3 guys who were in the car with Rich were seriously hurt. Thank God. I couldn’t imagine having to tell him that his childhood friend was in worse shape than he was. They all had blood on their clothing which I later found out was from Rich. This assembled crew would not leave until they had seen Rich and were assured that he was okay, relatively speaking.Finally around 10 pm we were taken up to a room. He was in so much pain and bandaged up like a mummy. After making sure he was settled I headed for home because he was so worried about critters there. I was in a sort of fog and got lost on the way home. The animals were happy to see me but the house felt so incredibly empty.

The next 3 days were a bit stressful. No broken bones or serious concussion, just some gruesome lacerations, soreness and serious pain. He was lucky it hadn't been worse. Over the next few weeks I would hear this phrase repeated often. "He was lucky." While part of me knew he was very lucky, another part of me kept thinking that luck would have meant none of this happening. Saturday was the worst. Several family and friends had said that would come visit him that day so I didn't call anyone to come be with me at the hospital while I was with Rich. It was a very long day since no one came until that evening. The pain meds were making Rich nauseous and there was an awful projectile vomiting incident that scared me. My mom had offered to come just to be with me, and at first I declined, telling her there was no need for her to drive 3.5 hours, but after this I asked her to come. She said she was planning on coming even though I said I would be okay.

It was such a relief when I saw my parents walk into the hospital room the next morning. This was all so foreign and scary to me. They stayed the day and with her background as an RN my mom made sure I asked the right questions and knew what was going on. My dad watched some game with Rich, keeping his mind off the pain.

Finally on Monday he was released and we went home. We both exhausted as hospitals are not very conducive for sleep for patients and sleep was elusive for me as you might imagine. Rich did not go to work the rest of the week, but I had to since it was days before Cleveland America's Walk for Diabetes and there was tons to do. Family & friends pitched in with food, support, dog walking and visiting Rich while I was at work. Cards and wishes of speedy recovery poured in from friends, family & the church family. Diabetes was basically ignored but in turn was quite vocal about it with skyrocketing blood sugars and quite a few lows at the hospital.

The healing has slowly but surely happened. We took the last stitch out last Sunday and there are almost no scabs now. He will have some decent scars on his head, I'm sure. The real magnitude of the whole thing hit me more in bits & pieces. Terrifying thoughts that I could have lost my husband, my life would come out of nowhere. Tears spilling down my cheeks on the way to work for no good reason and break-downs over nothing in particular.

A not so subtle reminder of how precious life is and how kind humans have the capacity to be.

Hello, Old Friends....

It has been WAY TOO LONG since I have made an appearance here in the blog-o-sphere. What can I say? Life has been full over here. Here’s an abbreviated list of what has been happening:


  • Got a new job which does not allow for ‘blog time’ at work as the old one did.
  • Started new job just in time for “Walk” one of the biggest events of the year so I worked and worked and worked and worked. I am not complaining - working for something you are passionate about, surrounded by others who are passionate about the cause as well is amazing.
  • School started – class 2 nights a week plus homework.
  • My husband was in a horrendous car accident and in the hospital for 3 days. I got a terrifying phone call from a social worker from the Trauma dept. of a local hospital that I hope to never get again. I was reminded of the kindness of friends and strangers and was able to witness “ER” like scenes firsthand without becoming ill.
  • I crashed a burned a few times after all the stress but have managed to crawl back up to normalcy (or as close to it as is possible for me).
  • I have made some peace with Diabetes and remembered what an invaluable source of strength this world of diabetes blogs is.

So here I am, full of all sorts thoughts, frustrations, feelings, emotions, observations and general nonesense to share with you.

8/08/2006

I Got It!

Remember that job that I didn’t get that I thought would be perfect for me?

Well.... 5 months later I did get it. (Can’t help breaking into a stupid grin here)

I have known for almost a week now but it didn’t seem real yet and I guess I was a bit superstitious in that I thought if I blogged about it, it might not come to fruition. My notice has been put in at my current-boring-job (that-I-sort of-fell-until-where-the-benefits-are-good- and-the-people-are-really-nice-but-it’s-time-to-move-on) and my last day there is this Friday. In a word YIPPEE!!! The announcement has been mad to the whole church and a good-bye lunch is planned for this Wednesday. Most of the family & friends know. I have a start date at the new place. I am super excited. I guess it really is happening.

You are probably wondering where and what this job is. I will be the Coordinator for the Cleveland area chapter of the American Diabetes Association! I have met at least some of the people in the office over the years through my involvement with the annual walk and am excited to work with these fun, positive people. Of course I will still be doing some office work and administrative duties but it will for a cause that I am passionate and knowledgeable about. I will also get to do more hands-on type stuff.

This job just feels so right. When I was a kid the only thing I ever wanted to do as far as a career was to help kids with diabetes or run a camp for kids with diabetes. Well this job is not either of those exactly but it sure is closer than what I have been doing and I can’t wait.

7/31/2006

diabetes scares me

With my normally calm, cool, collected and slightly humorous disposition it came as a bit of a shock when I realized that diabetes scares the shit out of me. For the most part I am able to roll with the punches, take what comes my way. I am not a worry wart. I am trusting and laid back. Diabetes and what my future may hold scare me.

When will the first complications show up? It’s been 23 years, so they must be lurking there right below the surface. I have by no means been the poster child for good, tight diabetes control so after this long the complications must be near. That diabetes is something that often kicks my ass scares me too. At times it leaves my body feeling used and broken not to mention my spirit. I am trying to turn the fear into strength rather than let it eat me up inside.

The first big step was realizing that diabetes scares me. I had the image of myself at age 11, when diabetes was new and cool, uncomplicated, something that made me different, whose problems I could handle since I was, invincible, stuck in my head for so long. I hung onto the idea that diabetes was no big deal long after I realized it was a huge deal. If it wasn’t a big deal then it couldn’t hurt me.

The problem being, that if you let diabetes control you rather than controlling it, it does hurt you. My first challenge is to do at least 6 blood sugars a day. I keep telling myself, that the actual number is not as important as simple doing the blood sugars and acting on the results right now. I can’t let myself be afraid of those numbers-they are simply tools. I know that soon I will need to work on getting them in range but I have to be consistently doing the actual tests before I can fine tune things.

The next or rather concurrent challenge is to log. In a word – YUCK! I hate to log. Even when I was young and really didn’t mind having diabetes that much I did not log willingly. My mom had to bribe me to get in the habit of logging before going off to college with a pair of Birkenstocks if I wrote down all my sugars for 3 months. I got the Birks, but not so much the lasting lesson. Although for 3 months I did write down my sugars because I really wanted those sandals. Maybe I should try a less costly reward plan.

If I can face my fear and turn it into positive action there just might be some hope for a decent hbA1C and in turn less fear.

7/14/2006

Frustration/Ranting

Admittedly, I am pretty blasé about my numbers. Anything under 120 and I usually feel low. Hovering around 200 I feel great. Strange, but true. But 429 on a day when I actually tested before breakfast and again after and made the necessary correction is way high even for me! I woke up with a splitting headache, checked my blood sugar: 165, and guzzled some water and ibuprofen, waited for that to kick in then onto coffee. By the time I left the house the pain was mostly gone. After about 30 minutes at work it was back & by lunchtime had reached epic proportions. I took more ibuprofen with water and went to lie down (one of the few perks of my job is ‘Ladies Lounge’ with a comfy couch in a dimly lit room). Shit, I know I should test. 429 – WTF? I corrected earlier for my 285 and have not eaten anything since. This awful headache, maybe I am really getting sick – damn!

My infusion set came out and I didn’t even notice it. Could’ve been the particular pair of pants that I am wearing, linen drawstring ones that rest dangerously close to the site. Four hours and close to 15 units later, and I am down to 200 and starving! My husband, after making sure I am okay and that it is coming down, tells me that I have to be more careful. I know this is true but I absolutely hate it. My thoughts are so clogged with other things there just doesn’t seem to be the space to worry about this too.

I will probably crash later. I hate having to worry about this hate feeling like this. I am so not cut out for the role of diabetic. ARGH!!!!

6/23/2006

this & that

It was time for my bi-monthly check-in with MMDA again and I put it off until the last day. Given what happened last time I called (see Maybe It Was Me post from April) I was not looking forward to it. I am happy to report though that the person I spoke to this time was very nice and very professional and offered no judgments about my diabetes care. Phew!

Now maybe I will actually answer the phone when they call in August instead of having to call them back before they discontinue my free supplies.

The exercising is going really well. We are going consistently and this morning I was given the last pieces of my Full Body Workout by the lovely trainer and now I will be spending close to 2.25 hours at the gym in the morning (warm-up, 45 minutes cardio, abs, strength (arms 3 days, legs 2 days), stretching then showering and getting ready for work - Whoo Hoo! Snark-asm aside, I feel good when I am actually working out and feel better about myself. It’s the only the beginning so I am not yet obsessed with seeing results, and I know that takes time. I am sleeping better (but that could be the Requip) but I am still very sleepy most of the day at work. Yesterday I actually fell asleep at my desk for about 10 minutes. Frustrating because I thought this whole exercise thing was supposed to make you less tired?!?

Now the diabetes care on the other hand is in maintenance mode. Not fabulous, not horrible. It feels like I can only concentrate on so many things at once and the whole exercise thing and 6 week summer class have taken up my allotment. The exercise should be a habit now & the summer class is over this Tuesday so after that it’s time to concentrate on those blood sugars.

6/19/2006

Wedded Bliss


When people say to me “your husband…” or call me “Mrs. …” it is sometimes like “are they talking to me?” We’ve been married for 1 year today (yesterday 6/18/06) but it still makes me smile to hear my new name or to hear R referred to as my husband. Our wedding day was absolutely perfect. Truly. That was pre-pump so I didn’t even have that to worry about and my only wedding memory that has diabetes in it is when I was getting nervous before the ceremony and my mom suggested that I test; I did and it was around 250 but I didn’t want to drop low during the ceremony so I left it. I was especially worried about dropping low on the walk down the wooded path, and up the slight hill to the rock ledge that we would be standing on for the actual “I do’s.” We wrote our own vows so I definitely wanted to be able to read them; knowing that there was little chance I would actually remember the words I had so carefully chosen to say. There were so many other feelings that day that I was not even thinking about how I felt diabetes-wise.

To be honest, I am not sure that I even tested again that day. Thankfully I didn’t have any real problems that day. I am quite sure that my blood sugars were crazy. What with the nervousness, utter joy, excitement, awesome meal, dancing like a fool with my sisters, nieces and friends, and yes, of course the libations. I’m pretty sure that I remembered to take my Lantus at some point before going to sleep because I don’t remember feeling like crap the next day, but I really don’t remember. For that one day, I didn’t feel like a person with diabetes. I just felt like me. Melissa: girl about to become his wife and, it was wonderful.

I hope I can have other days like that; ones where diabetes just fades into the background, becoming practically invisible, but if not, at least I have the memory of that perfect day.

Happy Anniversary, R! You are my window….

6/16/2006

She's Here!


Madelyn Madeline Grace Rivers
June 15, 2006
7 lbs 2 oz.
Welcome the the world, Baby Maddy! We are all so excited that you finally made your appearance. Just so you know, your mommy (my sister) and daddy are two of the most amazing people around and are going to be wonderful, wonderful parents to you. Your dad will probably be more of a pushover and your mom can be tough but she has the biggest heart so don't worry. The rest of you family is pretty fantastic too. Grandma and Grandpa L. will be there in the next couple of days to see you so I am sending tons of hugs & kisses with them. You are the first grandchild from their 3 daugthers so they are likely to be beside themselves with excitement.
I can't wait to meet you, Maddy!
Love your Aunt Melissa

6/13/2006

What are you so afraid of?

Remember that fear always lurks behind perfectionism. Confronting your fears and allowing yourself the right to be human can, paradoxically, make you a far happier and more productive person.
Dr. David M. Burns

Fear (or the fear of failure.) Could that be a big part of why I am so resistant to really paying attention to diabetes? The concept that I am a bit of a perfectionist is foreign to me. If I were in fact a perfectionist than I would do better at so many of the things I am not that good at, is the reasoning in my jumbled head. To an objective person this may not make sense but in my mind it makes perfect sense. If I were such a perfectionist I would actually be trying to be perfect all the time, right? I wouldn’t let my diabetes management fall to the wayside. But then it clicks: if you don’t even try you can’t have failed. Ah HA!

But now that I have discovered a small to piece to the method of my madness, how do I figure out why I am so damn afraid of failing? I am no stranger to screwing things up royally, alienating my family, pissing people off, giving up, or failing in general, so why this? Why now?

Some of the images of ourselves or identities we labeled with from when we were children just seem to stick with us. I was the baby of the family, the spoiled one, generally agreeable, not much of an athlete, a dork at school, creative, polite and good at diabetes. I was eager to learn all I could to take care of myself, thought the shots were cool not gross, liked being different, loved all the diabetes camps & trips I got to go on and was a favorite among my health care team for being a fairly compliant patient despite my ‘brittle’ diabetes. I was on the front page of the newspaper and in a local commercial, all because of diabetes. There are many things I am not much good at but this; this was something I was good at.

Except that I wasn’t always and the older I got, the worse I was but ingrained in me was my identity as a good diabetic. And not it seems I am afraid of not being such a good diabetic after all. I am afraid of failing. Rightly so, I suppose, since the stakes are pretty high – retinopathy, neuropathy, kidney failure and many other big, scary words. I’ve got to deal with that fear.

6/12/2006

The bottom line...pride?

Within the span of 15 minutes, I shamefully eat a candy bar (sans testing, sans bolusing), show the Professor ads on blood glucose machines for an assignment, (which leads to a mini-discussion on the advances in diabetes) and say “I wear an insulin pump.”

Notice that I did not say “I have diabetes” or “I am diabetic.” No ownership of this disease that, like or not, is mine. I will however talk about, educate about it or use it as my trump card when it is useful to me.

As soon as the conversation with the Professor ended I wondered whether or not anyone had seen what I ate and then heard what I had said. Paranoid, maybe?

It was this strange sort of awakening in how I deal with diabetes. The bottom line is that I don’t want it. Don’t want to share my body with it, don’t want the lows, the highs, the restrictions, the complication or the guilt it brings. I don’t want any of it…unless, of course, it will benefit me in some way. I have made no real commitment to this disease.

I look at myself and wonder how I can still have such a twisted, complicated relationship with diabetes after over20 years. Have I really learned so little along the way? Why can’t I "just put on my big girl panties and deal with it"? How do all you other PWD’s accept it? From my very limited viewpoint it seems like there are people who have done a much better job of the acceptance and commitment to taking the best care possible of themselves than me.

Yeah, sure, none of us asked for this. Not one of us honestly likes having diabetes, although some are much better at finding the silver lining than I. It seems to me though that in order to effectively manage diabetes and live with it you need to take some ownership of the disease. How do establish some sense of pride about something you loathe? I’m not thinking the kind of pride where you tell every single person you meet about the disease or have it painted on you forehead (although isn’t wearing a trusty medical id bracelet pretty close?) but more along the lines of enough pride that makes you (me) want to the best job possible in managing diabetes*.

I’m not sure where I got it from but I have a picture in my head of a grandpa type saying something along the lines of whatever you do, do it well and do it with pride. That is sentiment that for the most part I believe in. But how do I have pride in and do the best at something I simply don’t want?


*side note: as I was typing this, the spelling correction I was given for my spelling of managing that came up was: mismanaging – hmmm?

6/02/2006

Catch Up

I feel like I haven’t written anything in a while. Diabetes sometimes just gets lost in the crazy web of life. Or maybe it would be more appropriate to say that when life gets busy I tend to ignore the ‘betes more. Life is happening, I am living it and I just don’t want to deal with diabetes. For more on that check out Scott’s post. Here’s what’s happening in my neck of the woods:

1. I have been busy with school. I am taking a 6 week summer class so it’s a ton of work but very interesting.
2. Yard work – not very exciting but the yard looks good thanks mostly to my husband.
3. Work has been busy which is uncharacteristic for my job. Lots of “not quite right” people stopping, calling and generally making shake my head in wonder.
4. My most recent obsession of making my blog’s appearance reflect who I am has taken up quite a bit of time. I like what you see here better than the green but I am not done.
5. Getting up at 5 a.m. four days this week to go the gym!!!! Yes, my sister (otherwise known as ‘Anonymous’ on this blog) and I have been getting up early, doing the elliptical, trying not to injure ourselves on the machines, then showering, dressing etc. and heading to work. We are quite pleased with ourselves and plan to continue our morning routine.

So, true to my crazy way of rationalizing things, I figured that since I was getting all this exercise so it was okay to not test that much and slack off even more than usual on the diabetes front. My blood sugar mid-morning today proved me wrong: 512! That is way high even for me. Surprisingly, I did not feel as awful as I would have that. That number is really not going to help to lower my A1c at all.

This weekend I am going to Toledo for the annual OWE Festival (historic house tours, art fair, junk food, neighborhood wide garage sales, people watching and porch sitting) so paying attention to diabetes will not be easy but I am going to give it the old college try!

5/24/2006

A Touch of Diabetes

Watching the news the other night with my husband there was someone being interviewed about some health issue and this is what we heard:

“My mother had some trouble with diabetes and I think I may have a touch of diabetes too. Yeah, just a little bit of diabetes.”

I turned to my husband, R, and he had a knowing look in his eye and a smirk on his face, knowing that I was about to pull out my soap box.


Outrage in my voice, I say, “A touch of diabetes?”

The volume rising I ask, “So if he has just a little bit of diabetes does that mean that I have a whole bunch?”

The smirk on R’s face is more like a smile now. He knows so well how the lack of education about diabetes pisses me off. We both break out into laughter but not before I get in my dig about the lack of education about diabetes for the average American. And then I put my soap box away and just enjoyed laughing with my husband.

5/22/2006

Girly stuff, lows, and laughter

Let me first say that I love my doctor. She is my primary care doc, internist or whatever you call the one who handles anything that is not diabetes. At least now that I actually have an Endo, but before I had an Endo she helped me with that, too. This doc is young, hip, friendly, knowledgeable, very willing to try new treatments, and just someone you could picture being friends with. She will also do all the ‘girl stuff’ (pap, breast exam, etc.) that is recommended yearly.

I had an appt. this week to see her for a consultation about some prescriptions, my trouble sleeping, and to have the dreaded girly exam. I was not looking forward to that part of the appt. at all. It has been years since I had any of this recommended stuff done and by the time the appt. rolled around I was questioning the wisdom of having everything done by the same person. I worked myself into such a tizzy over this appt. that I was a shaky, sweaty, elevated heart rate mess by the time the doc came into the exam room. I had to admit that I was nervous about the appt. and she couldn’t believe how frazzled I actually was about this appt. Her: “You come here all the time, Melissa.” Me “Yeah, but I usually get to keep my clothes on.” Her: “You are really sweating.” A light bulb goes off in my head and I do a blood sugar while trying to keep the handkerchief sized gown secure. Yup, I was low.

We both laughed at my getting so worked up that I made myself low over a simple exam.

You have to laugh at yourself or you’ll cry your eyes out….

5/19/2006

I (insert your personal favorite expletive for hate here) lows!!!!!

I was jolted from a peaceful sleep at around 5:30 this morning by my throbbing hand. This is my body’s newest way of telling me I am low. I fall out of bed, do the requisite b.s., guzzle juice and burrow back under the covers since lows make me extremely cold. I don’t technically need to get up until 7:00 to get ready and leave the house by 8:15 to make it to work on time so I stay in bed with the morning news on drifting in & out of sleep. Next thing I know I look at the clock and it reads 8:00…SHIT! I jump out of bed, and start running around frantically trying to get ready in record time. I look at the clock again and it read 8:15 but in my mind it registers as 7:15 so I slow down and continue to get ready at my regular pace. I feel a little groggy from my earlier low (which was 70 and really wasn’t that low) and feel a low headache coming on but not too bad.

I make coffee and have some cereal, which I bolus for without checking my blood sugar again. At some point during my getting ready for the day I glance at the clock and it reads 8:45 but in my mind registers 7:45 and think, I’m doing o.k. on time. I get in the Jeep, turn the key and the radio clock reads 8:58. What the %$&@? It finally processes correctly. I am supposed to be at work right now! What happened? I guess I should have checked again when I woke up for the second time.

Needless to say I was quite late to work and the day hasn’t gotten any more normal. My low headache has reached epic proportions (no thanks to the drilling of concrete going on right outside the front door), my blood sugar has rebounded, my sense of time is completely out of whack and I am getting the strangest inquiries and requests from visitors to the church today.

“Where would I find my doctor, in the Yellow Pages or the White Pages?”

“Is my name in your historical book? I think my mother was one of the founders.” Keep in mind that this particular church was founded in 1820.

“What is the name of that restaurant across the alley from that one restaurant around the corner from you? I will need a little more information to help you since there are several restaurants and a couple of alleys right nearby as this is a downtown church.

“I was there last Sunday and I dropped some change…did you find it? My name is _______”

“If I sign up to volunteer, how much will you pay me?”

“Got any soap?”

Ah, the joys of working at a downtown church with a mind hazy from being low.

5/16/2006

Reformed Test Strip 'Collector'

I am a reformed test strip ‘collector’. I used to drop them many places in my halfhearted attempt to contain the used strips in the pocket of my One Touch case. That was until my CDE pointed out to me that it was pretty gross, and unsafe to let those little strips with the dried up blood on them float around. Part of me thinks that this is no big deal, it’s such a tiny amount of blood and it’s my blood, but part of me agrees with her. The part of me that agrees with her is the same part that also wants to impress her since she is such a cool lady and so I have heeded her suggestion of putting the used the test strips in an empty test strip bottle. So simple yet I had never thought of this before.

So now, since I never liked the case that came with my meter that came with my pump I throw everything into a much cuter little case that my friend gave me (thank you Court) and so that I can tell apart the two bottles
I have put stickers on the discard one.

I am not by nature, a neat freak, by any means. I have to consciously try to be neat and remind myself to close cabinet doors, but this is one little place where I can keep some order.

5/11/2006

Endo Appt.

Hemoglobin A1C: 9.1

The doc was not concerned since this is no higher than my last A1C over a year ago and I have only been on the pump and recommitted to my care since January. I was really hoping for lower.

I get so worked up over these routine appointments. You would think that I would be used to them after 23 years but I’m not. Driving to my appointment, my stomach is in knots and I am nervous, worried that this will be the time when my blood work will show that my body has finally had enough. I am lucky, other than my high A1C, I have avoided complications yet again.

“Your blood work looks good…kidneys are fine, liver fine, your LDL is a little high (105) but your HDL is great so I’m not worried about that…Your BP also is great.”

Huge sigh of relief.

We changed my basal rates and she, of course told me to get some 2 a.m. checks. She told me about the CGMS and recommended getting it if at all possible. The general consensus was that I was doing alright, just needed to keep working on getting those blood sugars down and in turn get my A1C closer to 7.

I left feeling pretty darn good about it all.

Then I looked at the paperwork she had given me with the results of my labs and notes from the visit. Under Review of Systems - Weight: Gained. Physical Exam: Obese. I am well aware of the fact that I need to lose some weight but to see the word ‘obese’ on my chart was a bit of an eye-opener. Obese means unhealthily overweight. Not a thing was said about this. Having diabetes puts me at a higher risk for all sorts of things and being what they call obese cannot be good, so I would think that would be addressed. It was pointed out to me that perhaps the doc figured I had enough going on (with the diabetes & depression) so didn’t think it was a good idea to bring up my weight and that maybe I was looking for someone to tell what I already knew. She may be right.

I suppose I can do one of 2 things: waste energy on being upset about something I already know (that I need to drop more than a few pounds) or I can do something about it. I’m going with the latter. Today will make 3 days in a row of walking at lunch time for me – GO ME!


Small steps, one day at a time.




5/08/2006

Interviewee Answers

Here is my interview by Art Sweet:

When did you know that your husband was The One?
Honestly, I think even before our first date. I am the one who asked him out first and I remember thinking that I had to be ready before I did so, ready for something big. In many ways it didn’t make sense because we are different in many ways but I just knew.

Is there anything you'd like to do, but haven't done because of your diabetes?
It’s hard to decipher whether it was the diabetes or just me that has kept me from doing things…


What do you hope to do once you're done with school?
Anything but the boring job I am currently in. Finishing school for me is more about actually finishing that goal than the result. Officially my degree will in Marketing. This was a decision made spur of the moment right around the time I did not get the job with ADA that I desperately wanted & I thought that a marketing degree could help with getting a job doing fundraising or such for diabetes. Bottom line, I want a job that means something to me, that I am passionate about.


What's the best thing about living where you live?
Family & friends nearby.

How often do you see/talk to your family?
My sister who lives in town I talk to a couple times a week and see just about weekly.
My parents I try to talk to once a week and see them every couple of months.
My sister in Chicago I probably talk to once or twice a month and see a couple times a year, although it’s been more often lately with her baby on the way, and my wedding last year.
My in-laws are all in town as well so I talk to & see them fairly often.
The few aunts, uncles and cousins that I have I only see on special occasions but thanks to my mom keeping in contact with them I get info on what they are up to.

If you want to participate:

  • Leave me a comment saying “interview me.”
  • The first five commenters will be the participants.
  • I will respond by asking you five questions.
  • You will update your blog/site with the answers to the questions.
  • You will include this explanation and an offer to interview someone else in the same post.
  • When others comment asking to be interviewed, you will ask them five questions.

5/05/2006

"it's not my fault"

I have, in my own way, been trying to stop and really think about why I make some of the choices that I do. Some of the reasons behind the feelings have been pretty obvious especially when I took the time to analyze them. You know, procrastination and avoiding confrontation at any cost, because my coping skill is avoidance, rebelling against diabetes because I am angry that I have it, that sort of thing.

One that took me by surprise is the realization that I hate it when my blood sugar is ‘good’ but I don’t feel good. If my blood sugar is not in range then I have my explanation of not feeling well right there. I have found that I really don’t like not feeling 100% especially when I don’t have a reasonable explanation for it. Could this be why I often let my blood sugars wander higher or lower than I should? I also don’t like it when I have say a pain in my hand but no visible sign; I want to be able to see concrete evidence of what is the matter with me, not just symptoms.

Diabetes really doesn’t work that way. It is more a behind the scenes kind of disease, wreaking havoc without the apparent gore. At least if my readings are off I can pinpoint what is causing me to feel bad. Much, much, more than I should, I use the disease as an excuse. Some of my rationale is that I put up with so much from diabetes, that I am entitled to get something back where I can. I’m not saying that I use the disease all the time, to get out of doing anything unpleasant, just that I fall back on the excuse more than I should. I liked being low during school as a kid because then I got to go in the coatroom and eat lifesavers, and act silly.

I marvel at the bloggers out there who say they never use the ‘betes as an excuse and refuse the let it limit what they achieve. Me, run a marathon or have a very high stress, high profile job, yeah right, I just don’t see it. My self-confidence has not reached that level.

Yesterday, my blood sugar was 142, but I felt like crap. Near perfect reading, not too close to feeling low for me. I felt dizzy, run-down and just not right. Looking back over my numbers, I realized that they had been pretty darn good for the day, the past few days even. I hated it. My blood sugar was good, so I was supposed to feel great, dammit!

Where I get these ideas I do not know. Reasonably I recognize that I am ordinary person who happens to have diabetes and that this does not mean that I don’t experience the regular everyday ailments that we all do. Illogically, though I want to be able to explain and yes blame all those aches, pains and flaws on the ‘betes.

Diabetes is my nemesis, so it makes sense that everything is its fault, right?